23-27 November 2019
2nd International Young Reseachers Conference on deafblindness
This year the conference will be held at the amazing and cultural capital of Russia – Saint Petersburg.
The conference is a big event for talented students, graduate students and young scientists from Europe, Asia, America and Russia who are interested in research issues related to dual sensory impairment/deafblindness.
The main aim of the conference
The main aim of the conference is to give the opportunity to young scientists within the field of deafblindness to share experiences and to help create an international network of young scientists in working towards interdisciplinary research to meet the demand of challenges in the field of deafblindness.
- Students and young scientists from all over the world will be able to give presentations and to share their research work on that involve different clinical, theoretical and practical issues related to help people with dual sensory impairment/deafblindness.
- All participants are invited to the plenary lectures of well-known researchers within the field of deafblindness.
- All participants will have the opportunity to meet with adults with deafblindness and parents of children with dual sensory impairment/deafblindness. This will give both researchers and practitioners a better understanding of the needs which are related to deafblindness.
23, 24 November – a conference devoted to youth with deafblindness with ability to participate in art workshops, excursions, team-building exercises, creative dramatic training and etc.
25 November – Young Adult Deafblinds and Researchers will jointly participate in a program that provides facilitated activities for networking, building relationships, identify/discuss emerging challenges in the field of deafblindness and participate in the design future studies.
26, 27 November – are for young researchers to share their experiences in the field, present their research, discuss their shared as well as country-specific developments in educating and support individuals with DB. In addition, participants will have an opportunity to learn from the leading experts in the field of deafblindness who will present plenary sessions and workshops:
Many decisions that we make in our daily life are based on insuficient knowledge, myths and repeated practice over the years.
Research is a systematic way to connect reality to knowledge and to uncover information that is not available through observation and participation in daily life. It is a way to find reliable answers to pending questions raising in our daily practice.
Through different activities during the presentation, participants will be encouraged to discover the fundamentals of research as well as ways to collect, analyse and summarize data that will lead them to answering their research questions.
This workshop session will begin by familiarizing you with different types of action research and the basic principles of conducting action research. Participants will learn how to write an appropriate action research question, based on a research topic of their choice. They will also be mentored in selecting data sources to fit their research question, and in planning for data analysis. Resources on potential journals and other dissemination options will be shared. Each phase of research and participant activity will be illustrated with brief examples from action research studies in deafblindness.
Description: Researchers and practitioners need to know the state of evidence for instructional practices. This information can support researchers in selecting research topics and in crafting interventions. This presentation will share how the evidence levels for practices in deafblindness were determined and the general state of evidence (across practices) within the 12 topical areas analyzed. More detail will be provided on evidence-based practices in assessment, communication, life skills, and social-emotional development. Participants will learn of recent publications and a website where they can learn more about evidence-based practices in deafblindness.
The use of standardized cognitive assessment tools alone is insufficient to capture the cognitive abilities of people who are deafblind. Assessment should include informal assessment instruments, dynamic assessment and ecological assessment procedures to capture the individual’s abilities. Based on the assumption that the person with deafblindness may be finer equipped at perceiving the world from a tactile perspective, the tactile cognitive characteristics of the person should be considered when assessing the cognitive abilities of people who are deafblind.
Before starting with research, most researchers will need to write a research proposal. In this proposal they explain what they intend to study and which procedure they will follow. Research proposals are reviewed by funding agencies, university committees and other stakeholders that can decide if the study will be accepted. The main purpose of a research proposal is to show that the study is relevant, of good quality and performed by people with sufficient expertise. Writing a good proposal is, however, not easy. We will address criteria of a good proposal, the crucial elements that need to be included and the preferred writing style. We will exercise with reviewing and writing research proposals.
Daria Udovichich Mahmuljin, MA (Croatia): Importance and Nature of Transdiciplinary Approach in Research and Practice: Impact on Creating Evidence Based Practice Model
In order to address complex issues of children and adults with deafblindness we are dealing with in the wider ecological context, we need to apply transdisciplinary approach in the research and in practice. We will see how to evolve from inter and multidisciplinary to transdisciplinary approach ,why is it important and what it takes to implement a transdiciplinary approach both in research and in practice. Further on it will be shown what are the outcomes of such approach and their impact on creating the model of Evidence Based Practice as the most efficient model there is in care and education.
Dr. Jerry G. Petroff (USA): Transition from School to Quality Adult Life
What ways can we appropriately plan for the future life of our youth with deafblindness? This would include reporting on a Post-School Outcome Study of Youth with Deafblindness (USA); the results of a literature review on what other countries are doing in transition from school to adult life practices?
Topics such as Self-Determination, Community-Based Instruction, Vocational Preparation, etc.
How it was last year
Here you can see how it was last year.
15 years of experience in the field of Deafblindness, working with a very wide range of people and organisations, mainly education, but also research and care. Frank has worked internationally, as a member of the Board of Deafblind International and being active as treasurer and Vice president of DBI. He has been the director the Deafblindness Centre of Excellence of Royal Dutch Kentalis in the Netherlands. Frank has a special focus on the development of children and information and communication technology.
Сlinical neuropsychologist and consultant psychologist attached at Haukeland University Hospital and at Statped Vest center for special needs education in Bergen, Norway. He has some 25 years of clinical and research experience working with children and adults with sensory impairment, including persons with congenital and acquired deafblindness. He has a longstanding interest in syndromes with sensory impairments, and his current research investigates the neuropsychological functions of tactile cognitions, particularly in persons with deafblindness. Dr. Nicholas is a member of the Norwegian professional team involved in the identification and diagnosing of deafblindness. He was the chair of the scientific committee for the 9th European conference on Deaflindness in Aalborg, Denmark in 2017.
PhD Professor at The College of New Jersey (TCNJ), School of Education in the Department of Special Education, Language and Literacy. His experience working on behalf of students, youth and adults with disabilities and their families spans several decades. Holding a doctorate in psychological studies in special education, and a master’s degree in speech pathology and audiology, he has developed expertise in inclusive education, early communication, social network development, assistive technology (augmentative and alternative communication), and the transition of students with disabilities from school to adult life. Dr. Petroff’s specific focus for the past 40 years has been in the area of development and education of infants, children and youth with deafblindness. More recently, he has worked under the mentorship of the late Dr. Jan van Djik in development of materials associated with Child-Guided Assessment; conducting research regarding fathers of children who are deafblind; and the pos-school lives of youth with deafblindness. In addition, Dr. Petroff is the Executive Director of TCNJ's Center for Sensory & Complex Disabilities, which is a technical assistance, training and research institute dedicated to topics related to individuals who are deaf, blind and deafblind.
Susan Bruce, Ph.D. is a Professor and Department Chair of Teacher Education, Special Education and Curriculum and Instruction at Boston College. Susan’s primary research interests are communication/language/literacy development and assessment in learners with multiple disabilities, especially learners who are deafblind. She has published 32 peer-reviewed articles that are specifically about research in deafblindness, including collaborative and participatory action research studies. Additional publications are in the fields of severe and multiple disabilities, visual impairments, and deafness/hard of hearing with additional disabilities.
Dr. phil., Сomissioner for Deafblindness at the stiftung St. Franziuskus Heiligenbronn. She is mostly working with congenital deafblind, but has also specific knowledge and experience on acquired deafblindness. In her PhD she analysed early parent-child-interactions with children with CHARGE Syndrome, since then she is focusing on CHARGE Syndrome in her work. She got the Young Professional Leadership Award from DbI. She published five books on CHARGE Syndrome in German language, one in English language and on in German language on Usher Syndrome.
Assistant professor in Moscow State University of Psychology and Education. Psychologist in Deafblind Support Resource Center. About 15 years worked as a psychologist in the School for the Deaf, Home Department for children with multiple disabilities. Has more then 25 publications in Russian. Main topics are cognitive development of the Deaf, sign language and communication, communication in families with deaf and deafblind children.
Works as an assistant professor special needs education/deafblindness at the University of Groningen in the Netherlands. Dr. Damen also works as a senior researcher at Royal Dutch Kentalis and is a core project member of the National Resource Center Deafblindness in the Netherlands. She has over 20 years of work experience in the field of multiple disabilities and deafblindness and has published several articles, books and book chapters.
Regional Director Europe & Eurasia at Perkins International. Has over 20 years of experience of working in the field of multiple disabilities, visual impairment and deaf blindness. She is an experienced director with a history of international activities, leading projects and research. Darija has extensive knowledge and experience in deafblindness and multiple disability assessment, early intervention and educational programs. She has established program that provides highly specialized and comprehensive services to children with visual impairments and other multiple disabilities as well as deaf blind children and young adults. Until recently she has been a director of that program - Mali dom – Zagreb that is nowadays regional resource center providing education for other professionals in the fields and carrying out number of research projects where professionals from different scientific and academic background work together on different range of topics related to the improvement of the education and rehabilitation of infants, children and young adults with neurodevelopmental delays, sensory impairment, deafblindness and multiple disabilities.
Deadline of registration to the conference and abstract submission is extended to October 10, 2019.
November 23, 24 – a conference devoted to youth with deafblindness with ability to participate in art workshops, excursions, team-building exercises, creative dramatic training and etc.
November 25 – Young Adult Deafblinds and Researchers will jointly participate in a program that provides facilitated activities for networking, building relationships, identify/discuss emerging challenges in the field of deafblindness and participate in the design future studies.
November 26, 27 – are for young researchers to share their experiences in the field, present their research and discuss their shared as well as country-specific developments in educating and support individuals with DB. In addition, leading experts in the field of deafblindness will present plenary sessions and workshops.
Registration to PRE-Conference
November 23-25, 2019 (for young people with DB)
- The registration fee for the Pre-conference the is not required.
- Youth with deafblindness should be interested in new experiences within the global community and have a desire to make new friends.
Registration confirm free access to all events, excursion and activities on November 23-25, includes:
- Conference Bag and Program.
- Coffee-breaks and lunches.
Registration to Professional's days of Conference
November 25-27, 2019 (for specialists)
The registration fee for the Professional's days is 100 Euro, includes:
- Free access to all events, excursion and activities.
- Conference Bag and Program.
- Coffee-breaks and lunches.
- Access to conference proceedings after the event.
Parameters for Participation (Young Researchers):
- Applicants must be young professionals who are interested and/or currently engaged in research within the field of deafblindness (it`s not important to have a great deal of experience in the field and a participant can be newly engaged.
- Proposals may include presentations reflecting both large or small (single case) studies representing various fields (e.g. psychology, pedagogy, medicine, physiology, social work, etc.)
Presentation Categories (Young Researchers):
- Master Class Presentation: The Master Class is a 20-minute presentation of original research or practice relative to individuals who are deafblind and supported by current/emerging evidence.
- Short Message Presentation: The Short Message venue reflects a 5-7-minute presentation of original research or practice and/or an emerging research/practice idea or concept.
- Poster Presentation: Posters are an excellent opportunity to demonstrate the use of an emerging innovative practice, typically in the early stages of development.
Step 1. Registration
To participate, please fill in the registration form below, choose the form of participation and submit abstracts until September 30, 2019.
Step 2. Payment
The conference venue is The Herzen State Pedagogical University of Russia – one of the famous and oldest universities in Russia.
The main area of the University is located in the historic center of St. Petersburg and was included into UNESCO World Heritage List in 1990. It is a unique architectural palace and park complex built in XVIII-XIX centuries specially for educational institutions. Famous architects took part in its construction: Francesco Bartolomeo Rastrelli, A.F. Kokorinov, J.B. Vallin de la Mothe, D. Kvadri, P.S. Plavov.
The fantastic location of the conference venue will let you enjoy the significant architecture, amazing history, and wide infrastructure of the city with its shops, museums, and cafes.
Entrance to the University – Kazanskaya street, 3
Subway station «Nevskiy Prospekt» – 10 min walk
Subway station «Admiralteyskaya» – 15 min walk
City-Tour for young persons with deafblindness
You will be able to learn about one of the world's most beautiful cities – St. Petersburg, its extraordinary history and rich cultural traditions and visit one of the museums.
There will be workshops for all the participants in the directions of acting vocals, stage speech, acting, motion, and music.
Performance of Russian inclusive theater school «The nights of Kholstomer»
The performance grows out of the actors’ improvisation on the themes of the novel «Kholstomer» by Lev Tolstoy.
A pinto foal is born: will his mother love him, despite the spotted skin? How does it feel to be a young, strong horse and belong to a cruel master? To be loved and to be driven? «Nights of Kholstomer» is a performance-discussion about motherhood, the strength of youngness, support for the herd, love, and fatigue. The use of improvisation allowed the actors to fill the performance with their own view of social problems and the philosophy of life, and most importantly, with their love for the foal, who still does not know what «piebald» means. The play involved deafblind persons and hearing actors.
Night City-Tour for specialist
Tour along the spectacular floodlit monuments. Magical and magnificent by night, a drive through Saint Petersburg and its beautiful illuminated buildings should not be missed by any visitor of the northern capital.
Closing dinner and dancing party
Address: Bts Lenizdat, Fontanka river embankment, 59 А
Entrance is under the arch.
All events are free for conference participants.
15 min walk to the venue, €40-50 per night
Hotel Herzen Houze
15 min walk to the venue, €60 per night
5 min walk to the venue, €60 per night
15 min walk to the venue, €50 per night
5 min walk to the venue, €30 per night
Russian Visa Documents
The vast majority of foreign travelers wishing to enter the Russian Federation must bear a valid Russian visa.
- Due to the Russia-EU visa facilitation agreement, most of the Europian citizens may apply to Humanitarian visa to enter Russia.
All information on how to obtain a Humanitarian visa you can find here
- For the citizens of other countries, we recommend obtaining a TOURIST visa to the Russian Federation. In that case, you need to indicate the purpose of visit the Russian Federation as a TOURISM in all your visa application forms.
To get visa support for a tourist visa you have to book a hotel and request it for visa support documents (invitation). Usually, hotels make that service promptly and free of charge.
- Please note: It is now standard practice for US citizens to be issued with a three-year multi-entry visa for all trips to Russia. The procedure is the same as for applying for a standard 30-day travel visa.
- How Long Does It Take to Get a Russia Humanitarian Visa?
The average processing time for a Russia Visa is 10 days. Yet, the processing can take from seven to 20 working days. If you need the visa within a short period, you can apply for expedited processing. It takes three working days to process and costs quite more than normal processing.
The Russian Deafblind Support Foundation «Con-nection»
in collaboration with
The Deafblind Support Resource center «Yaseneva Polyana»
Deafblind Academy «Con-nection»
Project manager Julia Mayorova
Travel-coordinator Katerina Yaritskaya